Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary fro...
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EDS Conference
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Please go to EDNF.ORG and check out the conference that is at the end of this July. It is a chance to meet others like you and to learn so very much...........Just read the list of special speakers. Please come if you can.
Posted on 03/11/08, 12:03 pm |
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Our group is world wide support group for Chiari and all of it's related disorders based in Billings Montana. We meed …
I challenge everyone to go to www.ednf.org (the Ehlers-Danlos National Foundation) and sign in so that you can download …
I've never posted here, so maybe I'm being selfish by jumping into a whiny post... I just need somewhere to vent where …
