Dystonia Support Group

It's been a few days! How do you feel it is working now?
God Bless!

Janelle

HI janelle , doing good .Driving again , out and about .Tks for asking , God bless

I can't remember the first time that I got botox A (there is also B).

Can you believe that dystonia is classified as a "non-painful condition" by the medical books. Makes me want to smack them in a private place and then ask them if that is a "non-painful" condition, too.

If this is considered a non painful whatevery, I would love for all the doctors have it. Sometimes it feels like my neck is breaking.

Well they may not consider this pain , but i'll bet you they never squeezed a baby out thier " painful places" !! lol
Joan D

so..ummm...should I be worried about getting my first shot?

My doctor has told me to get the botox injections, but I have so much feel of having them done. I have heard some real horror stories and don't want to become one of them. My doctor wants to do 8 injections between my neck and my shoulders, but I don't think my insurance company will cover them. Any comments from anyone else about the injections? The pain is so horrible by the end of the day that I can't even stand to have my husband sit with his arms around my shoulders.

I am having a botox iinjections in the end of the month. What should I expect?

My Hubby has Dystonia, and has tried the Botox shots a few times.

Unfortunately, they don't do much for him. His Dystonia affects his whole body. Using Botoxfor him would be like trying to stem the tide of water from a leaking dam with a finger!!

For someone with a more localized dystonia, such as cervical, or facial, then it would be a great option!

Botox blocks the pain message from getting sent to the brain, it does work but for it to work for my husband he would need dosages way too high for safe usage!

God Bless!

Janelle

Thanks for info. Most of mine is in neck and left shoulder.