Dystonia (literally, "abnormal muscle tone") is a generic term used to describe a neurological movement disorder involving involuntary, sustained muscle contrac...
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Cervical Dystonia
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Hi i was diagnosed with Cervical Dystonia a year ago. Then i went back about jerky movements in my shoulders and legs. Saw a trainee doctor. Who said it was all in my mind and i needed psychiatric help. Because he couldn't see the tremor in my neck. Which goes when it disides to. It had calmed down by then along with the jerky movements in my shoulders. So i was undiagnosed. God knows whats on my medical records say. Slowly the movements have started to return. My neck is starting to twist to the right and my shoulders are jerking at night. Quite strongly. My friends and family are starting to notice it again. Help. Has anyone eles had dystonia come and go like this. After the the treatment i had last time im not in a hurry to go back through the mine field of diagnoses.
Posted on 04/08/08, 02:04 pm |
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OH MY DEAR HE'S WRONG. GET A SECOND OPINION I SEE A PHYSICAL MEDICINE AND REHAB MD PLUS NEURO DR. FINDING THE RIGHT NEURO MD IS TRICKY. I TRIED INJECTIONS IN THE SPINE AFTERWARDS I COULD GO DANCING. LATER THE SHOT MEANINGLESS. STARTED WATER EXERCISE CLASSES FOR CHRONIC BACK PAIN THEN PILATES. I WEAR HAND SUPPORTS HAND WAX BATHS. NOW PAIN FREE AS LONG AS I KEEP IN MOTION AND TAKE KLONOPIN AS NEEDED TO STOP JERKING. NO LONGER NEED MY CANE. BUT USE WALKING STICKS TO IMPROVE BALANCE. GOOD LUCK DEAR. NURSE FROM THE GREAT NORTHWEST. SHOP FOR THE RIGHT MD BEST OF LOOK. 
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i have exactly the same symptoms? it just comes and goes, 1 day im fine and then i can feel the build up coming. ive had it for about 15 years, and had the same experiences where i havebeen pushed from pillar to post i found that drink cured it, but i got cirrhosis, so now i just take tranquilizers? they work for me, im just an emotinal zombie while im on them. i have found that stress excassberates it, if you need any help, get in touch.....
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See a recommended Neurologist in your area- if you don't know of one, go to the dystonia-foundation.org web site and see if they know one in your area. This is exactly what I have, and I take botox injections every 3 1/2 to 4 months, plus medications. Your meds should be geared to your condition. Konopin is extremely addictive. I don't take it. BJ Dean
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