My mother is on dialysis
Hello my name is Tina. My mother's on dialysis. The reason for me joining this group is to understand what she is going …
Dialysis is a type of renal replacement therapy which is used to provide an artificial replacement for lost kidney function due to renal failure. It is a life s...

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seeking patience while looking for donor
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I've been on dialysis for seven months and thought I had a live donor, who was a matching blood type, but that donor later had second thoughts and backed out on me. That potential donor is my son.
It's not that i don't understand his reluctance as I was the type of guy that ran and hid from the doctors for most of my life, even though my dad was a doctor. I just don't understand how people think that life on dialysis is good enough and that it's not worth the sacrifice to help me out. Don't they understand that I'm desperate? Yes I am living, and I have a great wife and beautiful 9-year-old daughter who love me, but this life is only a portion of the life I once had. Am I being selfish to want to be normal again? If I have to wait to get a deceased kidney I will but I need patience during the process. Is there anybody out there who can tell me something to help me? George White Posted on 04/15/08, 05:04 pm |
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I read the Bible and place my faith in God......that's what helps me. At least we are somewhat alive!!!
:)Sue
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Talk is cheap ins't it? I had, count em, 15 people say they'd give me a kidney when they became aware of my problem.
One, my half-brother, actually saw the Doc but he was too old. My blood brother said NO right from the start. The reality of life is that few people are going to give up a organ and take a chance on dying during a operation without a pretty good cause. Lacking that good cause I'd have to agree it is foolish. Why take on your problem? There are exceptions of course and stranger donations have been publicized recently. Spend your time waiting for a cadaver donation by helping legislatures pass what's called "Opt out" laws. This is where, when you die, unless you specifically state you do NOT wants your organs transplanted they can be. It's estimated that the donation rate would go from 20% of deaths to 80%. Most people don't really care they just don't want to be bothered about it. Especially since it forces them to admit they really will die. What I did was watch the other patients to help me realize that a ton of people were far worse off than I was. I was 49 when I went on dialysis and 64 now. I've been on dialysis a total of 9 years with two kidney transplants inbetween. One is working now. Read this on home dialysis, it can change your life. I've known people to decline kidneys because they were doing fine on this type of dialysis: http://www.kidney.org/ATOZ/atozIte... American Association of Kidney Patients and the National Kidney Foundation are some great information centers. Find a Forum on dialysis subjects alone not a generic one like this. Keep your hope up, things will get better.
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I am on the transplant list.
my hubby is a match but during his testing we found out he has prostate cancer. Finding this out was a God thing he does not go to drs.We caought the cancer in the early stages. He is going alternative treatment for it. I wil wait for my turn on the list. peace to all
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You are very brave to admit how you feel about your son stepping back from giving you a kidney. I have been on dialysis for 5 1/2 years and I am still waiting for someone or a cadavaric kidney. We have to have patience and it is not easy to do that all of the time. Just feel blessed about your family, I have no one except myself. You will be fine, just stay in prayer.
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