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Reply #1 -
03/05/08
4:01am
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oops, this was suppose to be on the diabeties II board. Sorry... 
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Reply #2 -
03/05/08
4:04am
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I was diagnosed at 11 (I am now 25). My dad also had type 1 but died when I was a baby. My family did not want to be clingy and overprotective so they went too far the other way and did not speak about it for years. I was left alone to deal with it. Doctors did not help either - I was dumped by the paediatric clinic at age 16 (there was no public transport in my area and my parents were working so could not always drive me) and no further care was arranged. I persuaded my GP to let me go to the adult clinic but I hated it and stopped going and saw nobody for years. I only started taking BGs last years after an education course I got myself onto which really helped. I have always eaten a lot and eaten the wrong things but at least now I understand it better and I am trying. I am terrified by complications and in fact this makes me unhappy so I eat which I know is stupid but I feel like a sword is hanging over me and may fall at any minute. I hate it that my body is silently destroying itself without my knowledge. I wish there was some immediate consequence if I ate badly, that would make it easier.
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Reply #3 -
03/05/08
4:30am
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Lizzie, I hope I did not make you feel bad. Uncontrolled diabeties is what harms the body Not controlled diabeties. When we control our b/s we can live a normal life and have the life expectancy of a normal person. I have a son who is a diabetic, (type I) and he controls his well, lives a good life and has no problems. I think it all boils down to loving yourself and your body to take care of it. ((big hugs)) Verdie
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Reply #4 -
03/05/08
6:14am
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Don't worry ves, it isn't your fault. But my diabetes has been uncontrolled for years and even now it is so hard to know what is the best thing to eat or do and the stakes are so high. It does worry me although I seem to have been lucky so far.
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Reply #5 -
03/05/08
8:15am
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I was diagnosed the day before my 14th birthday, and placed in the hospital the day after. My blood sugar was 256, and I had lost over 70 pounds in 3 months. In high school, I did not control my blood sugar on purpose. When they put me on insulin, it also caused me to put on weight, so....if you don't take your insulin, you lose your weight!! Unfortunately, it also caused me to have a minor case of diabetic neuropathy in my thighs, which has now cleared up due to my watching my diet and insulin intake. I have family support, but no one else in my family is a diabetic..I was the lucky one.
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Reply #6 -
03/05/08
8:28am
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Rosa was diagnosed 12-21-04 since i have ocd we keep it in good control lol her highest A1c since diagnosis was 8.5 that was one time she is usually around 7. When she was diagnosed we decided to make the entire house and family diabetes friendly. The other children are surprisingly supportive and my son looks out for rosa like u wouldn't believe. we even have the baby on rosa's food schedule. it didn't start out perfect though it took work. It put a strain on my marriage and i have anxiety issues i am working on about it. But with time and understanding and most importantly communication we are getting there. sorry if i rambled.
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Reply #7 -
03/05/08
3:39pm
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Phillip was dxd (type 1) 3 years ago, at age 7. We've had some problems keeping his numbers under control, but since he started pumping its been a lot better. His grandfather (dads dad) was dxd type 2 about 12 years ago. He never took care of himself. Lost his leg a couple of years ago. He is now in hospital dying. Not expected to live more than a few weeks.
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Reply #8 -
03/05/08
3:50pm
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Sugarmonkey, I am so sorry about Phillip's grandfather. When I started pumping my sugar level came down also. My last alc was 5.7. I love my pump, as it is sooooo much easier. Hooray for Phillip and doing so well. Way to go! Hugs to you, ves
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Reply #9 -
03/06/08
2:40pm
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I was around 12 or 13. Just old enough to have dreams and hear doors to opportunities slam shut.
My family was very supportive.
Two years ago, I went through a phase that many diabetics go through: it's called "screw this!" I abandoned the diet, ate what I wanted had dives and peaks, and passed out a few times. i stopped testing and guesstimated my dosages. My moods yo-yo'ed along with my BG readings, and nearly died. I found myself in a hospital with no recollection of going there and i stayed until they got my numbers back under control and me back in compliance. wish it had happened sooner. Now I have diabetic retinapathy in both eyes and usable vision only in one. The tears probably would have happened anyway, but my actions sped the process up, I'm sure.
Funny - being blind makes being diabetic seem insignificant.
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Reply #10 -
03/06/08
10:18pm
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I am 19 years old, and I was diagnosed just over 3 months ago. So far, I have been keeping it pretty well under control, after adjusting my insulin for several weeks of course. I am still in my honeymoon stage, so I can eat extra and not cause too many problems. I do my VERY best not to take advantage of that because I know it will make it harder once I can't rely on my own insulin.
I live with my sister, and after my diagnosis, she was very supportive. My entire family has been as supportive as they can be, seeing as this is the first "disease" in our family. Most of them don't know what to say to me, but I know they do care and are there for me.
It is scary to read about some of the things that you guys have gone through. In this case, being scared is a good thing because it kicks you into gear. I wish you all the best and pray that you continue to inspire and motivate others like me to take care of themselves and their diabetes.
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