Congenital heart disease is heart disease in the newborn, and includes congenital heart defects, congenital arrythmias, cardiomyopathies, and hypertrophic cardiomyopathy (HCM). Con...
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Hi I'm new here. My daughter is now 7 yrs old. She has Subaortic Stenosis and Aortic Insufficiency. She has not had open heart surgery they are delaying it as long as possible, which is fine with me!! I also have a 16 month old born with a hole in his heart. They are hoping it will close on its own but are watching him because of his older sister's condition. I am glad to find a site dedicated to support, sometimes I need to just chat with people who know what I'm going through and I also have plenty of questions and concerns! Hope to make some new friends in the process.
Posted on 08/17/08, 08:08 am |
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Hi and welcome! I have a 3 month old little guy who goes in for open heart surgery at the end of Sept. He has what is called complete atrioventricular canal defect. I also have a 10 year old who when he was younger had a whole in his heart, but it closed on it's own. Definately around if you have questions or want to chat! 
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Sarah's mommy, I would love to be your friend. I cna be emailed at diane.stowers@hotmail.com. Write me and we'll talk
Diane
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to everyone here...
I had heart surgery at age 6 for a PDA....and am living with EA....the info is on my profile...2 congenital heart defects... my heart goes out to the parents of children with heart issues...I remember my own having to struggle with it.... my ear is always open....
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I joined the site awhile back. Grandaughter is having issues of missing lower left half of her heart. It is going better now after first operation. Found out very earily. Thank God. She is on www.carepages.com and keyword is Stowers. Grampa was not really in denial for the first few months but well....you know the feeling. You just can not bring your self to look at the info...right now. Possibly tomorrow or next week!
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