What is Charcot-Marie-Tooth-Disease
Charcot-Marie-Tooth disease, also known as Hereditary Motor and Sensory Neuropathy (HMSN) or Peroneal Muscular Atrophy, is a heterogeneous inherited disorder of nerves (neuropathy)...
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Sunday October 12, 2008
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Can't let go, I'm holding on so tight. It...
Kyna Oct 02, 2008
Journal Entry for October 2, 2008
Thursday, October 2, 2008
Can't let go, I'm holding on so tight. It's hard to breathe when the whole world falls. suns right in my eyes still feels like night. A thousand times a day I hear you call. i saw the stars just go out and fall from the sky, falling all around me my heart cries. i believe we'll find the world together, through your eyes its all i can see i believe we're looking at forever...
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had to sleep downstairs last night, legs hurting a...
stshep Oct 01, 2008
Wednesday, October 1, 2008 |
had to sleep downstairs last night, legs hurting and unable to stand much, as day has gone on i,m feeling very dizzy and sick, worse day i,ve had for a long time
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Today was hell...I don't know why I even bothe...
Kyna Sep 25, 2008
Journal Entry for September 25, 2008
Thursday, September 25, 2008
Today was hell...I don't know why I even bothered to try and deal with my asshole driving instructor. It was a half day so I figured I'd get two hours done and almost have my permit, but NO. This guy was such a jackass. He said shit about my disability and made me feel like crap, so I am DONE. It is horrible how he treated me, I demanded to go home ater 45 minutes and came home crying. TH... -
hi my name is cassandra i am 26 i have spina...
cassie19825 Sep 14, 2008
looking for new friends and pals
Sunday, September 14, 2008 |
hi my name is cassandra i am 26 i have spina bifida and other problems i am married to michael he has muscular dystrophy he is 44 years old if any one wants to be penpals write me ok
cassandra mahoney
po box 5351
galt ca 956321 Recommendation1 Comment -
You can feel people staring; it's like the hea...
Kyna Sep 13, 2008
Journal Entry for September 13, 2008
Saturday, September 13, 2008
You can feel people staring; it's like the heat that rises from the pavement during summer, like a poker in the small ofyour back. You don't have to hear a whisper, either, to know that it's about you.
I used to stand in front of the mirror in the bathroom to see what they were staring at. I wanted to know what made their heads turn, what it was about me that was so incredibly differen...1 Comment -
I HAVE MISSED U ALL TERRIBLY. I HAVE BEEN SO...
littlemis... Sep 02, 2008
Tuesday, September 2, 2008 |
I HAVE MISSED U ALL TERRIBLY. I HAVE BEEN SO BEHAVING THIS TIME. I AM REALLY JUST EXHAUSTED FROM THIS BREATHING ISSUE TOO. JUST SENT OFF MY APPEAL FOR DISABILITY. NOW WAIT. IF DENIED IT WILL BE HANDLED BY LAWYER. CANT DO IT ..
I CANT DO ANYTHING BUT STAY CALM, RESTED, AND STILL ..DOCS ORDERS TO KEEP FROM HAVING ATTACKS. SO I HAVE BEEN AWAY FROM ALL WORK OF ANYTYPE FOR A WEAK NOW. AND J...1 Recommendation6 Comments -
Thought i would finally put a photo on, easier tha...
meeraM Sep 01, 2008
Journal Entry for September 1, 2008
Monday, September 1, 2008 |
Thought i would finally put a photo on, easier than i thought. Now you have a face to talk to. cheers to everyone!!!1 Recommendation -
Somedays it just doesn't pay to get up. ...
nevaeh3 Aug 19, 2008
Tuesday, August 19, 2008
Somedays it just doesn't pay to get up. I want to go crawl in a hole and close it behind me. Life just isn't fair. I have to be more positive and work for what I want in life. I can't let others ruin my life. I will be strong again I have to be. -
Thank you everyone, Gary is home and hopefully I c...
nevaeh3 Aug 12, 2008
Tuesday, August 12, 2008 |
Thank you everyone, Gary is home and hopefully I can catch up on some sleep. He has 4 doctor appointments set up already. His blood level was at 2.7 so they said he could go home. He needs to get an appointment book to keep everything straight. He still has a long way to go to get back where he was if he ever does.
I just can't thank all of you enough. You lifted me up ...1 Recommendation8 Comments -
HELLO MY FRIENDS..VERY SHORT..NO ENERGY MUCH TO SP...
littlemis... Aug 12, 2008
Journal Entry for August 12, 2008
Tuesday, August 12, 2008
HELLO MY FRIENDS..VERY SHORT..NO ENERGY MUCH TO SPARE..THANKFULLY MOM IS COMING..CANT WAIT FOR THE MOM ATTENTION...AHH.
I AM STILL VERY ILL..ALBUTEROL IS A NAUSEA WAITING TO HAPPEN..CONTROLLING ABIT NOW..STILL NEED TO GET INTO DOCS..SUPPOSE TO HAVE MADE MY APPT FOR ME ALREADY.
I AM REALLY WEEK AND EXHAUSTED..STILLL SLEEPING BIGGEST PART OF DAY..AND LURK AROUND IN SHADOWS LIKE DRACULA..(BILLS FAV FO...1 Recommendation9 Comments -
For some silly reason they put him through a sleep...
nevaeh3 Aug 12, 2008
Tuesday, August 12, 2008 |
For some silly reason they put him through a sleep study last night. I guess because of his breathing problem that started the whole thing. Barnes Hospital Doctors ordered it. At least he didn't have to go far to take it. Still waiting for blood level to get to where it needs to be before they will think of letting him go home. I don't even want to see this bill. I...1 Recommendation2 Comments -
He is still getting IV's of neprun (I think th...
nevaeh3 Aug 11, 2008
Monday, August 11, 2008 |
He is still getting IV's of neprun (I think that is what it is) it is a blood thinner and of course they are monitoring his blood very closely. They took 17 vails the other day. They are checking for a genetic disorder. Also thyroid cancer possibility.
Not able to sleep and the wheels in my brain are just going full blast. How in the heck am I going to pay this bill. There a...1 Recommendation5 Comments
Journal Entry for October 2, 2008
Thursday, October 2, 2008
Can't let go, I'm holding on so tight. It's hard to breathe when the whole world falls. suns right in my eyes still feels like night. A thousand times a day I hear you call. i saw the stars just go out and fall from the sky, falling all around me my heart cries. i believe we'll find the world together, through your eyes its all i can see i believe we're looking at forever...1 Comment -
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More »MEMBERS IN NEED
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So I thought I was doing so well. I have been off my meds for ever and have been excited about the new baby on the way. But I can feel myself sinking lower and lower. Feel like I am drowning in sadness and lonelyness. Here I am having another child by a guy who is never around. And who is as emotionaly warm as the north pole. I never get out because I cant driv...1 Recommendation
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More »INSPIRATIONAL STORIES
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My leg that i had problems with it has been healed for weeks 3 know. Well I'm just letting you know. Andy I'm very excited about it.1 Recommendation1 Comment
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More »POETRY CORNER
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Chances blown, Nothing's free, Longing for, Us...
Kyna Mar 21, 2008
Journal Entry for March 21, 2008
Friday, March 21, 2008 |
Chances blown,
Nothing's free,
Longing for,
Used to be,
Still it's hard,
Hard to see,
Fragile life,
Shattered dreams.
I don't know who wrote this, but i liked it and felt like posting it. The author is quite possibly my friend Rob, but he'd deny writing it even if he did so..whatever. It makes a lot of sense.1 Recommendation
Journal Entry for March 21, 2008
Friday, March 21, 2008 |
Chances blown,
Nothing's free,
Longing for,
Used to be,
Still it's hard,
Hard to see,
Fragile life,
Shattered dreams.
I don't know who wrote this, but i liked it and felt like posting it. The author is quite possibly my friend Rob, but he'd deny writing it even if he did so..whatever. It makes a lot of sense.1 Recommendation -
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