What is Carcinoid Syndrome

Carcinoid syndrome refers to the array of symptoms that occur secondary to carcinoid tumors. Carcinoid tumors are discrete, yellow, well-circumscribed tumors that can occur anywher...

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Zeloda and Temador
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My husband, Charlie, and I visited his oncologist at H. Lee Moffitt Cancer Center in April. The cancer drug, Sandostatin, is no longer working and Charlie's tumors in his liver are growing. The oncologist said at this point the tumors are inoperable (too diffuse) and incurable.

He said that we could buy some time, if Charlie wanted to try an experimental chemotherapy regimen. Charlie agreed. Its two weeks of Zeloda and five days of Temador. Then he is off the chemo for two weeks. He would not give us a prognosis.

Charlie and I are really struggling with this. It has been difficult to try to come to some sort of acceptance of the situation while remaining optimistic and hopeful
Posted on 05/17/08, 11:05 am
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Reminder: This is a support group for Carcinoid Syndrome. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Reply #1 - 07/03/08  5:43am
" My husband has neuroendocrine tumors and is on temador as well. It seems to be working although it is tough on him. Keep positive, we are trying. Email me and we will talk. "
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