Carcinoid syndrome refers to the array of symptoms that occur secondary to carcinoid tumors. Carcinoid tumors are discrete, yellow, well-circumscribed tumors that can occur anywher...
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Carcinoid Resources
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I know there are too many of us on this site, so I wanted to share some resources. Finding information about this cancer can be difficult, but my first recommendation to anyone dealing with this is to try to find a neuroendocrine oncologist. A regular oncologist usually doesn't have the expertise to deal with this.
This is a site for patients and caregivers: http://www.carcinoid.us/ This site provides medical information, a bit technical, and a list of specialists for carcinoid syndrome. My guy at Moffit is on this list: http://www.carcinoid.org/pcf/speci... Posted on 05/02/08, 01:05 pm |
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thank you so much. those are both great websites which I sent on to my mom. Dad is the one suffering and he has to get his treatment at the VA. They're good but sometimes I worry about them being outdated. they're not doing anything about his diarrhea. he is so exhausted which may or may not be related to the cancer. he's dehydrated and lacking in several vitamins because of the diarrhea. I'm a medical assistant but I am limited in my knowledge. Any way I can help is great. Thanks again. Lisa 
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So is there really nothing they can do for carcinoid cancer because it is so slow growing??
My dad has carcinoid cancer that has moved to his liver and his bones. he is pain free, thank God, but he is just …
Since before I was diagnosed I have had pain in the area of my liver, this is where most of my disease has metastisized …
