Journal Entry for April 1, 2008
Tuesday, April 1, 2008
I am so alone today. I feel like Acheybreaky's icon. life sucks.
CHARGE Syndrome Support Group
| Topics | Replies | Last Post | ||
|---|---|---|---|---|
 |
|
0 |
By michal
05/30/08 |
|
|
|
|
4 |
By BBfirefly
03/29/08 |
|
 |
|
1 |
By BBfirefly
09/06/07 |
|
-
I am so alone today. I feel like Acheybreaky's...
teachdhh Apr 01, 2008
-
silence....it's deafening
teachdhh Mar 29, 2008
Journal Entry for March 29, 2008
Saturday, March 29, 2008
silence....it's deafening -
work has been difficult. I'm making it so....
teachdhh Mar 28, 2008
Journal Entry for March 28, 2008
Friday, March 28, 2008
work has been difficult. I'm making it so. I asked to go to part time next year, don't know if it will happen. I just want to do a better job. I'm faking it now, need more time and to use the time I have better. Helps to practice what I preach. I don't like feeling this way. It's so overwhelming. Wish I had more friends on this place. Oh well. -
so, I got some much needed organizing done and rea...
teachdhh Feb 16, 2008
Journal Entry for February 16, 2008
Saturday, February 16, 2008
so, I got some much needed organizing done and really putzed before my 12:00meeting Fri. Went to the meeting went to the main office and gabbed, went to office max and walmart, hightailed it back to work and SHIT the doors were locked and I don't have ANYTHING I need. I'm under a different contractural obligation as everyone else and I have to work Mon. NOT even the jani... -
Work sucks...not focused. Want to run away....
teachdhh Feb 02, 2008
Journal Entry for February 2, 2008
Saturday, February 2, 2008
Work sucks...not focused. Want to run away. A.N.didn't want to go with the speech lady yesterday, he was being a little onry toward me, but grabbed my hand and wanted me to come too. I did and we got some good signing out of him. Ice Skating this week, not looking forward to it very much...field trips are good and bad...mostly exhausting.
1 Comment -
Took the hearing aid in Friday...warrenty ran out ...
teachdhh Jan 27, 2008
Journal Entry for January 27, 2008
Sunday, January 27, 2008
Took the hearing aid in Friday...warrenty ran out Wednesday before. I'm still around, miss you. -
jacob is haveing surgery on the 22 at emanuel...
gailmorgan Jan 12, 2008
Journal Entry for January 12, 2008
Saturday, January 12, 2008
jacob is haveing surgery on the 22 at emanuel hospital to fix his ear. It is a big surgery so I'm worryed a littel .But I know it will be ok win he can hear me. s pray for him. -
I can't believe that I'm actually going mo...
teachdhh Dec 13, 2007
Journal Entry for December 13, 2007
Thursday, December 13, 2007
I can't believe that I'm actually going more deaf. I have to get the the ENT to see why I've lost more hearing. No wonder my BAHA isn't working so great...it's me that isn't working so great...kidneys, emotions, hormones, eyes, ears. The school nurse called and said my daughter has 20/40+1 and 20/50+1 and my son gets to go to the audiologist tomorrow for ... -
I just love the holidays hope you all have a great...
gailmorgan Dec 06, 2007
Journal Entry for December 6, 2007
Thursday, December 6, 2007
I just love the holidays hope you all have a great one !!!!!!!!!!!!!!1 Comment -
Tried to get some work done today, but I'm too...
teachdhh Dec 03, 2007
Journal Entry for December 3, 2007
Monday, December 3, 2007
Tried to get some work done today, but I'm too uncomfortable and this damn computer doesn't have the capacitiy I need. I had to do my 24 hour urine sample today. It was gross. The first pee was the only one that resembled normalacy. After that it looked like coffee, dark brewed. I realize I don't go very much; I'm sure they will bitch about that. ... -
today is ok . we went to hospital to day jacob hea...
gailmorgan Dec 02, 2007
Journal Entry for December 2, 2007
Sunday, December 2, 2007
today is ok . we went to hospital to day jacob heart is inlagred. well find out more on the 7 th. I wish it wasnt so hard for him. but he is a good boy and I love him. -
Well, I'm hoping that this pain I've had f...
teachdhh Dec 01, 2007
Journal Entry for December 1, 2007
Saturday, December 1, 2007
Well, I'm hoping that this pain I've had for going on 2 years is all tied to my 1.2 CM kidney stone. It has been the biggest pain in the ass to get them to take me seriously. I'm reacting weird to the Tramadol...so no more pain meds for me until I get a different one. I'm going to spend today mostly on the couch because of the one I took last night. Never r...
Journal Entry for April 1, 2008
Tuesday, April 1, 2008
I am so alone today. I feel like Acheybreaky's icon. life sucks.
CHARGE Syndrome Information
CHARGE syndrome refers to a specific set of birth defects in children. CHARGE is an acronym for some of the most seen features in this syndrome.
CHARGE syndrome is sometimes referred to as an association. This indicates a non-random pattern of congenital anomalies that occurs together more frequently than one would expect on the basis of chance. Very few people with CHARGE will have 100% of its known features: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of (delays in) growth and development and/or central nervous system anomalies, Genito-urinary tract defects, Ear anomalies and/or deafness
CHARGE syndrome has an estimated prevalence of 1:10,000.
See more CHARGE Syndrome Information.
This support group doesn't have any member created groups yet.
Be the first to create one!
