Brain / CNS Tumors Support Group

Hi, my husband had glioblastoma multiforme or GBM. He was diagnosed on 11/11/07 and passed nearly 5 months later 4/9/08. It was a very fast disease and has left me reeling. I also have had brain issues. I have benign lesions that caused seizures when i was in school. If you want to know more on these matters i will share with you. bless you everyone. make the time you have with loved ones count. one never knows. my hubby was never sick and only 46.

Dear Elizabeth,

My husband also has a brain tumor, a glioblastoma grade 4.
His surgery was 2/19/08, he is having seizures now and is paralyzed on the right side, so he is in a wheelchair. They gave him 14 mos but I am beginning to think he will not make it that long.

Dear Becky,

my husband has a glioblastoma multiforme, he had surgery on 2/19/08 but is having sizures and seems to be going down instead of up.
The surgery left him paralyzed on the right side.
He did the radiation and a month of chemo.
Did you husband do radiation and chemo?
My husband is 56.

Hi, I just joined yesterday, guess it was good timing! I am 25 and was diagnosed in dec. with a GBM, but then they changed it to an oligostrocytoma, grade 4. Ok so I was diagnosed with a grade 2 oligoastrocytoma 4 years ago and I had surgery and radiation. I had mris every 6 months and everything was going fine. My experience motivated me to go to medical school this year but in december I started having seizures. Two sugeries later I started Temodar which didn't work for me. I am currently doing monthly chemo treatments at Oregon Health and Sciences University. I mention it because it is a fairly new protocol that not known to many people. I don't know if anyone else here has a tumor that would respond to the treatment but maybe people could look it up, it has helped me a lot. Look up Blood Brain Barrier Disruption or Dr. Edward Neuwelt. I know they only do it at a couple of hospitals but Ithought I would mention it. Good luck!

i,am also new to this sight my son had a brain tumor at age 30 he passed away at age 33 the tumor was cought to late he didn'e even know he had it until it was to late i,am on this sight to talk about the things that happen i do think it is a good idea to log the things you need to ask people i wish i had

Both of my parents had brain tumors. My father had glioblastoma and my mother had meningioma.

I joined this group to offer support to others going thru this difficult situation. I know how hard it can be.

Dear Elizabeth,
I am so sorry to hear about your husband's brain tumor. I can relate to your story, and it is a tough battle, let me tell you. My husband was diagnosed with a GBM (glioblastoma multiforme) in Jan. of '06. He had some of the finest doctors in the country treating him. After his initial surgery to remove as much of the tumor as possible, he underwent the standard 33 radiation treatments along with an oral chemo drug. More chemo, 3 clinical trials, and 2 more surgeries followed that. You must hang in there and be as positive and supportive as you can. Unfortunately, my husband lost his struggle with this horrendous disease in March of this year. I am dealing with my grief a day at a time, some of which are okay and others a nightmare. I know what you are going thru. If I can be of any help, please let me know.

Hi I'm Shelia and I'm 28 I had a brain tumor when I was 13 it was wraped around my spinal cord. I had it removed 3x it kept growing back. God held it. I do however have a shunt that drain extra fluid from my brain. I will have that the rest of mylife. I will keep you all in my prayers