What is Brain CNS Tumors
A brain tumor is any intracranial tumor created by abnormal and uncontrolled cell division, normally either found in the brain itself (neurons, glial cells (ast...
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Tumours + Epilepsy
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Hi all
I spend most of my time on this site in the Epilepsy & Seizures section because it is very active and I have gotten a lot of support, hopefully given some, and mainly because I am new to the whole "E" thing. My tumour was discovered in 2003 and the E started in September 2007. Everyone is great, truly. But I have yet to come across anyone on there that has a similar history to me. I know there must be someone out there who can share their path through brain tumour diagnosis to epilepsy diagnosis. It isn't just the tumour, or the E, it's the combination of that and having a undiagnosable benign tumour that is in the "tiger zone" (can't be reached). The likelihood of ever getting a biopsy is nil. Perhaps I am having more of a vent than anything else, I don't know. There are at least 3 billion people worse off than me in this world who live in poverty and dont have access to medicines. Sometimes it doesn't help to view it that way, because I am still left with a slow growing type of glioma sitting beside the part of my brain that controls right motor functions. I never expected to get E at all. When the tumour was found, I was told that it was probably nothing, but they would keep an eye on it through MRI'S. My quality of life has gone down dramatically since they said that, and who knows where it may lead... The tumour is growing, albeit slowly. I am simplyfing here, but I suppose I am looking to chat with people who have the tumour/epilepsy combo and how they deal with it. I try to stay positive, but I am starting to get confused as what I am dealing with, a tumour or epilepsy? I know I am sounding sorry for myself, I apologise. I am just looking for somewhere to belong I guess... Posted on 04/29/08, 02:04 pm |
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Hang in there my friend, I am in a time crunch right now, but I will get back to you. I have to be at the airport in 30 minutes. There are lots of poeple on her to support you, however this site is not to active. I will be back. 
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Seek out bobdum another member and there are others in this group that have seizures and I thnktha tis just normal with some brain tumors. Sorry, Also I wouldn't think twice about getting a second opinion. I actually got a second opinion and the second surgeon was much more helpful than the first. Please explain more and maybe I can steer you in the right direction. I have a braintumor and I know that not knowing is half the scare. Let me just pray for you know. Even if you do not believe the Lord does.
Heavenly Father take this one yet into your arms. Bring comfort peace and wisdon, knowledge for the fears that the devil has placed upon him. Lord take him in your arms and comfort him in this time of need. In Jesus name I ask in you time and your will bring this child of yours home ot you. Thank you Jesus. I can not ease all your fears but the good Lord is awesome.
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I had surgery for a pituitary tumor. After I had surgery i began having sezures. Your sezures could be because of the tumor. Some people develop them before and after surgery. Many tumors have been diagnosed due to having a grand mal seizure. I have some brain tumor web links if anyone is interested. Also i would suggest getting a second or even a third opinion. First and foremost be certain the doctor is very expeirenced in surgery. One doctor may say inoperable another may say I can. I guess you can count me in with the tumor and E combo.
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My husband started having fits in March of this year and has just been diagnosed as having a Ogliodendroglioma tumour. At the moment his epilepsy is controlled by meds. He is hoping to have a biopsy soon and then we will find out what grade of tumour it is.
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