Brain / CNS Tumors Support Group

No replies ... still; apparently not.

During my little "stints" with tumors though, the Pituitary tumor is usually not cancerous ... but can be. Usually causes hormonal/reproductive problems bigtime though.

My partners aunty has a pituitary tumor,she was told she wouldnt have kids but she now has 3.She gets headaches from time to time but shes ok.

Yes I am survivor. But even though I had the surgery 11 yrs ago I know suffer with hyperprolactinema on life long medication. In reality the surgery failed me.

20% of the population have pit tumors and do not know.

I have one.

Benign. No surgery. No muss, no fuss.

I guess I've had it for a while. It shut down my periods -- they stopped in August 2005. I just thought I had the easiest menopause ever!!

No such luck.

Detected by my high levels of prolactin. Did MRI in August 2007 and that showed the pituitary tumor.

Taking CABERGOLINE. 0.5 mgs 2x week for 4 weeks. This is final week. (I stalled treatment)

From what I understand i will have a blood test in 2-3 weeks to see if prolactin levels have lowered. Insurance companies too cheap to cover another MRI.

Was also on Risperdal for bipolar (though I am not bipolar). Had to go off that before could start the Cabergoline.

Anything I can help you with?

I have a pituitary tumor. I just learned about it a couple of weeks ago. It's making me really, really sick. I'm constantly nauseous (to the point I have to take medication for it), I've got constant headaches from it and my hormones are all screwed up. I'm currently being tested for Cushing's disease. I'm most likely a cyclical Cushie. Luckily I've found a very, very good endocrinologist who works almost exclusively with pit patients and who works with a neurosurgeon who has done tons of pit surgeries if I'm lucky enough to move on to that.

I have a pituitary tumor, and am in the middle to treatment. I go back next month to see if the treatment worked. If you have any questions please feel free to ask.

What treatment are you currently doing? I am hoping for clearance to get the holy terror removed eventually.

Yes I have one. It makes me lactate at age 50 lol... and other wierd things, but it's not big enough to take out..thank god! I had the other tumor out in 06 and I'm not ready to do that again!

First pituitary tumor was invasive..not all of the cells were extracted during the 1978 surgery.
In 2005, found out I have a new pituitary tumor, not as large as before..
Just biding my time until I need another surgery.

In 2002 they removed all they could of the pit tumor which is the pitts to have it. 6 yrs later dealing with the effects and Im always fearful of what the next Mri will show. They told me it was very aggressive. I had to have radiation. Life is not the pitts pititary tumors are.