Bone marrow transplantation (BMT) or hematopoietic stem cell transplantation (HSCT) is a medical procedure in the field of hematology and oncology that involves transplantation of ...
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My father had a BMT May 27, 2008. He was doing great, up until a month ago. Mood swings, depression, no appetite, not eating, sleeping all day, extreme weakness and atrophy of muscles, falling, dizziness. Does this sound like anything anyone else has experienced? My family and I feels lost and does not know where to turn to for answers or if what he is experiencing is normal. any help, advice, tips would be amazingg
Posted on 08/04/08, 02:08 pm |
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Yes, I went through all of those. Try music/reading. Does he like to do any hobbies like drawing/painting. It's just the shock of the event and it will be okay. It took me a good year to snap out of all that. If you'd like to email me you can do that at ohiolaurel@aol.com
Laurel 
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As a BMT nurse (not only a patient) my 1st response would be to discuss this with the oncologist. First & foremost you need to make sure there is not a physiological reason causing the symptoms. My next question, what kind of cancer did he have the BMT for? I wish him all the best.
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he had myelodysplastic syndrome (MDS). They had him first on cyclosporin and then changed it to prograf. those meds really did a number on his mental status. he is completely confused and disoriented, having vivid dreams, twitching/moving/shaking in his sleep, talking ALOT while sleeping, he is in the hospital now and barely knows where he is or what is going on, hes extremely out of it. ever heard of this happening? or experienced it yourself?
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I know my body didn't metabolize the cyclosporine at all...I built toxic levels in my blood, but didn't really have any of those problems. I did much better on Prograf & still take it if I show any signs of GVHD.
How old is your dad? I know that patients are more susceptible to drug reaction when they are older. Have the doctor said anything to you guys? I would be asking for some brain scans (i.e., CT of Brain or MRI) to r/o a tumor or such. Next, have they done any kind of blood tests? If so, what? Sometimes I see some of my patients have a high BNP level (indicates CHF), high lactic acid (indicator of sepsis), or an elevated ammonia level. There are many others. I would just press the docs for answers. Have his counts rebounded? Neutropenic or febrile? Keep me posted!
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Does anyone have any advice for someone who has a loved one that is about to start chemo?
Just thought I would get this out to as many people as I could In Blackfan Diamond (or Diamond Blackfan) Anemia the …
