Alpha-1 Antitrypsin Deficiency Support Group

Journal Entry for August ...

Over the weekend my wife and I went to a local Ita...

thp636 Aug 19, 2008

Journal Entry for August 19, 2008

Tuesday, August 19, 2008

Over the weekend my wife and I went to a local Italian restaurant where we were giving a going away dinner for a couple who are old friends of ours. We invited all of their other friends to join us. The turn out was pretty good and we wound up with 10 people in the dinner party.
Unfortunately the restaurant was very crowded and, even with reservations, we had a long wait. One fellow in our party,...

1 Comment
yay me

i coulodnt be more happier then i am today. i got ...

TattooedB... Aug 18, 2008

yay me

Monday, August 18, 2008

i coulodnt be more happier then i am today. i got accepted into the school. i am going for cosmetology. i am so nervous and excited right now. i start on monday. i am so proud of myself and happy to finally be doing something good for my life.
??????????????

I'm a little confused. My PF's are at my p...

thp636 Aug 15, 2008

??????????????

Friday, August 15, 2008

I'm a little confused. My PF's are at my personal best but I feel like ...well, you don't want to know what I feel like. Suffice it to say that I have had better days.
In the words of th great Charlie Brown..."Rats!!"
Tom

1 Comment
Update

I have been busy watching the extraordinary athlet...

thp636 Aug 14, 2008

Update

Thursday, August 14, 2008

I have been busy watching the extraordinary athletes in the Olympics for the last few days. They have displayed skills that I can only dream of. It's nice that the world has decided to put on this dazzing display for me. It makes my "house arrest" a little easier to take.
I am feeling OK but very tired. I may have to get my oygen level checked because I shouldn't be so dar...
Who'd a thunk it?

I seem to be on a roll. In the last week I have re...

thp636 Aug 13, 2008

Who'd a thunk it?

Wednesday, August 13, 2008

I seem to be on a roll. In the last week I have received messages here on DS that extol my many virtues. Last week a widow in Africa sent me a message that she was dying and needed me to manage her estate of $5,000,000 to set up a trust fund to help the poor. The money was in a bank on the Ivory Coast of Africa. I just needed to contact her at her enclosed email address.
Today I received a messag...
everything seems

seems to be out of focus these last couple of week...

TattooedB... Aug 12, 2008

everything seems

Tuesday, August 12, 2008 | A Sad story

seems to be out of focus these last couple of weeks. I can't seem to get a grip on anything, and reality seem so messed up. I feel as if i am walking on air but not in like totally bliss it more like confused mixed with every other emotion combinbed.I just don't feel like myself, i just don't feel anything except negtivity in everything. I just dont know what to do, and i am not one t...

1 Recommendation
Still feeling

like I am going no where. It sad to say ThatI feel...

TattooedB... Aug 12, 2008

Still feeling

Tuesday, August 12, 2008 | A Sad story

like I am going no where. It sad to say ThatI feel like I am back at my old self and I honestly don't like being the old me. I am irritated ,irritalbe,pariond,angery,depressed,tired,moody,scared,abonden,lost,confused,sad,on the verge of a break down, on the berge of tears, hopeless. Yeah and there are so many other feeling that i am not sure what they are. This is how i Feel everyday wh...

1 Recommendation
One mystery solved

We had another incident with that silly sparrow be...

thp636 Aug 11, 2008

One mystery solved

Monday, August 11, 2008

We had another incident with that silly sparrow being in the house. Fortunately my son was there and he pursued the bird until it went back out through the door. I was wondering why this bird kept winding up in the house after dark. My son said that it had been inside on yet another occasion when he had entered the house.
That's when the answer came to me. Since it seemed active whenever anyo...

2 Comments
The Heat is......GONE

The last couple of days I have been a bit under th...

thp636 Aug 08, 2008

The Heat is......GONE

Friday, August 8, 2008

The last couple of days I have been a bit under the weather. Today I am feeling pretty much OK. I almost had to return to the ER yesterday but things started to get better and have improved steadily ever since.
The heat wave has ended for now, and the weather is great. I am tired but should be back up to speed soon. I have 9 more days on pred. Hopefully I won't need it again any time soon. I&...

2 Comments
Well, I tried...

Since the heat was so intolerable today, I stayed ...

thp636 Aug 05, 2008

Well, I tried...

Tuesday, August 5, 2008

Since the heat was so intolerable today, I stayed inside in the AC and resolved to have a quiet day. I should know by now not to resolve anything. Again a minor "emergency" popped up in the house.
This evening I heard my wife and daughter hooping and hollering downstairs. When I went downstaiirs to investigate, it seems a small bird had gotten into the house. It was in a panic and was s...

1 Comment
Someone is testing me

I am wondering if perhaps fate is fooling with me....

thp636 Aug 04, 2008

Someone is testing me

Monday, August 4, 2008

I am wondering if perhaps fate is fooling with me. I am feeling terrific. My PF's are higher than they have been in months. My numbers are so far into the green tht it would make Al Gore proud. Now comes the kicker....it is going to hit the 100's temperature wise ,locally ,today and tomorrow. I think I'm being set up.
Well, I'm not going to fall for it. I'm going to stay i...

2 Comments
Boy do they look old

A good friend of mine invited my wife and I to a r...

thp636 Aug 03, 2008

Boy do they look old

Sunday, August 3, 2008

A good friend of mine invited my wife and I to a retirement party for his wife. She was a postal inspector and had reached retirement age. My friend and I had played baseball and softball together for many years. He also invited 5 or 6 other guys who had been on some of the teams. It was great seeing those guys again, but between you and me, they looked old. (Not like us, huh?)
The party wa...

1 Comment

Journal Entry for August 19, 2008

Tuesday, August 19, 2008

Over the weekend my wife and I went to a local Italian restaurant where we were giving a going away dinner for a couple who are old friends of ours. ...

1 Comment

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Alpha-1 Antitrypsin Deficiency Information

Alpha 1-antitrypsin deficiency (A1AD or Alpha-1) is a genetic disorder caused by reduced levels of alpha 1-antitrypsin in the blood. It can lead to emphysema and, in some cases, to liver disease.

Symptoms of alpha-1 antitrypsin deficiency include shortness of breath, recurring respiratory infections, or obstructive asthma that does not respond to treatment. Individuals with alpha-1 may develop emphysema during their thirties or forties, without a history of significant smoking (although smoking greatly increases the risk for emphysema). A1AD also causes impaired liver function in some patients and may lead to cirrhosis and liver failure (15%). It is the leading cause of liver transplantation in newborns.

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