What is Acromegaly

Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess gr...

Join Now

Free, anonymous support from people just like you.

Spread the Word!
Get a DS flyer to post
DS Store is Open
DS t-shirts and more
Discussion:
IGF-1 thread
Watch this 
View More Posts
It could be really interesting to follow one anothers IGF-1 levels. As everyone probably knows IGF-1 varies by sex and age but it still could be interesting. It would also be interesting to know what your peak IGF-1 has been.

My current IGF-1 is 269. Normal range for me would be(male, 32 years) between 90-350 according to swedish medical care. Preoperatively it was on 900(on Sandostatin LAR 30mg)! After surgery it went down to between 373 and 413. Somatuline autogel 90 mg now keeps me in normal range. No detectable tumour left.
Posted on 06/13/08, 07:06 am
RATE THIS POST:
Inspirational
Moving
Helpful
Creative
3 Replies Add Your Reply
Reminder: This is a support group for Acromegaly. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Comment:
Email me when others reply to this topic help
View More Posts
Reply #1 - 06/13/08  11:32pm
" It is my understanding that one needs to montior both IGF-1 and oral suppression GH test...

I have this info way back somewhere in my journal but at the time of diagnosis it was over 800 it dropped down to the noraml range once 5 months after surgery They checked it every month until April...then she wanted to wait 3 months..howevere my April rate was high 280 normal has to be under 250 for me I think I can't recall off the top of my head anyway I am 49 Female...we are waiting to decide about meds etc... "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative
View More Posts
Reply #2 - 06/15/08  7:22am
" Hi
Preop GH130 IGI-F over a 1000, lanreotide autogel every 21 days, GH now 50 still too high IGI-F 790 cabergolie now been added 2 weeks ago, bloods being checked next week, im 28yrs old female, hope to see levels drop Take care "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative
View More Posts
Reply #3 - 06/18/08  1:29pm
" I'm on Octreotide injections .5ml, 3 per day. My IGF-1 has dropped from 385 to 284 in the past month. My insurance won't approve the LAR monthly injection but will approve the 3 per day Octreotide because it's generic. Does any one know of a generic Sandostatin LAR?
Oh, my normal IGF-1 would be under 249 for my age. "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative

You might also like ...

new to site....have just been told of recurrence

By teddizoey 5 Replies

I am new to site and am looking for some support from folks who really understand the stress and journey of this …

to be or not to be.....a surgical discussion

By mctrjt 2 Replies

I thought it might help all of us to talk about why we may or may not have been advised to have surgery and why we may …

free Somatuline Autogel for 7 months

By bebellsha 2 Replies

Hi everyone, We are conducting a clinical study on Somatuline Autogel. Somatuline (R) Depot has already been approved …

Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Copyright 2008 DailyStrength, Inc. All rights reserved. Terms of Service | Privacy Policy | Report Abuse