Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess growth hormone (hGH). ...
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anyone have the same story about acromegaly?
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Hi,
I was diagnosed with acromegaly in april of 2007 and had surgery in may 2007.. I felt alot better the first few months but symptoms started to reapear and i have blood test about every two months.. Blood tests are normal since surgery but i've had an MRI just two months ago and when my surgeon saw the MRI, he confirmed to me that part of the tumor is still there.. My endocrinologist told me that i'm cured..I know it's not the case.. Does anyone have the same story since surgery? Posted on 06/09/08, 12:06 am |
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Hi, sorry to hear that your symtoms have come back, are you on any medication, if not maybe you need to see your endo again. maybe you just need meds. 
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I did see my endo this morning.. He told me that radiotherapy will not change my symptoms since blood tests are normal since surgery..Why symptoms are persistant is unknown..they should diminish with time but i do have to exercice alot and keep going to physiotherapy for my back..CoolCat
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I think jokey is right, this disease is sneaky, you have to keep on top all the time with it, maybe its just going to take time for everything to settle, the body has been through so much, I was told that Fexeril was very good to take all the muscle tension away, you could ask your doc, hope this helps, also I think this disease does leave problems, I suppose it audipends on how long you have had it, before diagnosis. Hope this helps
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Hi everyone,
Seems odd to have your symtoms coming back if your IGF-1/GH are normal. Where is that inoperable part of tumour? Maybe it´s rather a neurological structure problem?
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I have to agree with you I so think we are not cured that easily.Managed as in my case but to have a rare condition its a little more complex I am glad someone else is thinking along these lines.Jokey
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