Acromegaly Support Group

I was just telling my friend ( she used to be my co-worker) where I worked during my surgery and all that process, that I always felt emotional, like I could cry at the drop of a hat. Things that I could normally cope with bothered me alot... now I am not that way at all ( my family kinda off always thought I was a tough, sorta smartass, sarcastic personality) Which I kinda am... but not during all of this illness. I think some was hormone off, some was just emotions from not feeling well, some was being overly tired and relatively young and feeling beat down. But if it helps I think I am about 85% back to feeling myself again... (1yr post-op) I take thyroid and it has helped the most! Hang in there both of you two but ask the doctors what they think...maybe he could take something to enhance his mood in a good way. I wish I had done that! I'm thinking of you both! XXXOOO

Doughboy has been through so much Its so hard for all of us.I dont care what route we have or what treatment.There is so much more to Acromegaly.It has us emotionally everything.I am on Drug option and yes feel so much better but I fight everday its like a chess game but its onesided I dont know all the rules I wake up and think what you going to do with me today.I cry for myself and for the man next to me in the hospital who lost his friends his job and his wife through acromegaly.We could cry everyday but I wont let it beat me I might not win that chess game but I am bloody well going to try if it kills me.With the help of my family on here it helps. JJx

Im on tablets never had op. i feel like crying every single day all day. im finding it harder and i dont knoe =w what to do. my doctor has offered my anti depressants because he thinks im depressed, but im confused most of the time. one minute im happy the next i feel angry and want to cry i feel so down. would it be of interest to ask my doctor about this with acromegaly? is it just another labelling of acromegaly? i feel for doughboy and mum!! its hard and ive never lost myself like this before i know i can get back to being me its just having the strength to do that and thats why im so glad im here on ds. dont give in to this, keep fighting everyday! its the best we can do for each other that makes us stronger.
flouncy xx

Hi Dougboy and mom,
I have always been a "passionate person". I would feel things deeply. I was not afraid to cry and I would enjoy it and feel better. Then 6 years ago I started noticing that I was crying easier. At first I rationalized my tears connecting them to life events, silly TV movies, touching news stories, premenapausal stuff.... my tears increased over the next years. I felt as if I could no longer control it. I would cry 3 4 times a day and before my diagnosis I was crying 6-8 times a day. I knew this was not normal but I didn't know what to do. I was taking an anti depressant although I did not feel depressed. I have a friend who is a psyh and told him that I could tell the difference when I cried when I was sad versus something in my body that forced me to cry. This was very frustrating to me. I did not enjoy my tears. Knowing what I know now I feel very strongly that it was related to the acro. Remember I never thought I was sick. I was not someone going to the doctor trying to figure out what was wrong with me. After I took octreotide I noticed I stopped crying siginficantly. This at a time when I should have been crying cause I was diagnosed. After my surgery it all but stopped. In fact these last fews days I have noticed my tears have come easier. I have cried 3 times in the last 2 days. This is a red flag for me. I could feel that this was like the old tears physiological not emotional. There is nothing wrong with feeling depressed , emotional etc but it is also important not to overlook this symtpom. Once I made this connection it made me feel better. Even these past 2 days I thought hmmm ok I know what this is don't get down on your self. I know that Dough boy has a lot going on and I don't know how radiation may affect his mood. It might help to ask the radiation techs or nurses. also it might help to document the symtpom, like how often he cries what he thinks the trigger is and if he feels it is phsiological or truly a release of emotion. Sorry I went on and on but this was a very critical symptom for me. Please let Dough boy know that there are others who fel tthis way and that I am thinking of him and honor his courage.

Thank all of you so much for your comments. I know he's not alone with this. Thanks, Doughboy's Mom

Bless Doughboy's heart. I used to cry a lot before my first surgery, now I only cry when my hubby or kids say something hurtful. Can Doughboy talk to his doctor? I know as a mother you hurt so much when your child is hurting. Doughboy is very lucky to have your support. Take care, Mishxx

hey mate i know what your going through so your not alone ive cried a lot since ive had this thing ,most out of frustration but the rest for reasons i dont know stay strong and remember we are all in this together my hand and heart is there for you . Lets climb this mountian together, in my fire station we have a saying (we actually stole it from backdraft lol)if you go we go.It goes the same here your new family is behind you 100% plus

This whole thing is new to me but it makes me realize from your question and all the responses that it does seem to be a part of the process and I can relate to it, too. Sure hope that everyhing is normalized for him as much as possible as soon as possible. Also, that he feels better by feeling less alone. Take care of you, too, Mom. Its not easy. I hope you have found someone who understands who can be a source of strength for you. I think there is a real need for organized support for parents whose children are facing special struggles. Rose